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WHO WE ARE

The California Coalition for PKU and Allied Disorders (CCPKUAD) is a charitable organization dedicated to raising awareness and providing support for families and individuals affected by PKU. Our mission is to advocate for improved access to treatment, promote research initiatives, and offer resources for PKU patients and their families. Through our website, we aim to provide information about upcoming events, educational posts, opportunities to become a member, avenues for donations, and comprehensive details about the PKU condition. Additionally, we strive to engage with the community, increase awareness, and offer merchandise that supports our cause. Our target audience includes individuals impacted by PKU, their families, healthcare professionals, and advocates of our mission.

CCPKUAD Board of Directors

Desirae Lau

Co-President

Margaret Knight

Secretary 

Daniela Crabil RD

Program Coordinator

Dianne Obert

Co-President

Alex Klimowski

Treasurer

Stephanie Flickinger

Program Coordinator

Bryce Paolella

Vice President

Xianyi Zhang

Program Coordinator

Rachel
McGowan RD

Program Coordinator

What is PKU?

Read more about PKU and the other associated inborn errors of metabolism (IEMs) the California coalition is supporting by raising awareness and advocacy

What We Do

Our efforts offer a variety of resources to the PKU and allied disorders community within California.

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